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donorstories

Avalanche Victim Turned Organ Donor Honored and Remembered

Mark Massanari and Bobbie Gorron are the parents of Corey Borg-Massanari, one of two skiers who tragically passed away after being buried in a rare, inbounds avalanche at Taos Ski Valley while on a ski trip in January. Corey was a Colorado native and an avid skier who moved to

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The Most Important Lesson My Brother Taught Me…

Christy Setzke is a donor sister from Wisconsin. Her brother, Todd, was an organ donor after his passing. Christy now advocates on behalf of organ & tissue donation. Most recently, she hosted a Donor Dudes event at Ashland High School in which she spoke to 11th and 12th-grade Medical Science

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A Living Act of Kindness

Jordan is Hudson’s mother and organ donation advocate. My son, Hudson, was born on October 27th, 2016 with a condition called heterotaxy. At ten days old, he underwent surgery to prevent bowel mal-rotation and, while operating, an exploratory search revealed Hudson’s liver was shaped abnormally, had an unusual color, and

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It’s Not About the Cards You Are Dealt; It’s About How You Play Your Hand

Jacob Ragland is a liver transplant recipient and college student at the University of Tennessee. At my high school, every senior is required to recite a personal talk in front of the entire student body and staff. This task was in the back of my mind going into my senior

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A Firsthand Perspective: Summit for Life 2018

Last month, the Chris Klug Foundation (CKF) hosted our 13th annual Summit for Life, a nighttime uphill race on Aspen Mountain. Participants began at the base of Aspen Mountain and climbed 3,267 vertical feet—over 2.5 miles—to reach the top. Racers hiked up the mountain at their own pace, using climbing

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From MELD to Marathons

Maksim is one of nine individuals who will be running on the Chris Klug Foundation’s charity team in the 2018 TCS New York City Marathon on Sunday, November 4th. “They must have mixed up the lab results,” said Annabella, reading the letter that had just come in the mail. A

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Time to Transplant: Bella’s PSC Story

It all started when Bella Pacini was in first grade. She was diagnosed with Crohn’s disease, an inflammatory bowel disease in which the immune system attacks the gastrointestinal tract. At the time of diagnosis, Bella’s doctors noticed that her liver enzymes were elevated and she would have to undergo additional

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The Kidney Warrior Project

Lisa Emmott is the creator of the Kidney Warrior project, an effort to raise awareness about living organ donation while encouraging people to become living organ donors. Lisa and her husband, Neil, sat down with CKF to tell their story and talk about why living donation is so important. When

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No Greater Love

Brian Hinsley is one of CKF’s 2018 Bounce Back Award winners. Kim Hinsley is Brian’s wife and caretaker during his lifesaving liver transplant. I’m going to share Brian’s journey from my side, the caregiver’s side. Brian and I have been married for 22 years now. On our wedding day, we

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Living and Breathing a Love for Life

Samantha Rick is one of CKF’s 2018 Bounce Back Award winners. Samantha Rick was diagnosed with cystic fibrosis (CF), a fatal genetic lung disease, when she was just three years old. Sam’s lung capacity slowly deteriorated as she got older and, at the age of 27, she was put on

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