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Tagged as: Primary Sclerosing Cholangitis

How Receiving a Transplant Inspired a Career

Written by Alex Kula, liver transplant recipient. Edited by CC Cunningham, CKF Program Manager. Life is only as normal as we perceive it to be. Prior to any of my health challenges, my life almost felt too normal. I first noticed something was amiss when I was 15 years old,

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From Sharing a Desk to Sharing a Liver

Written by John Paulsen, liver transplant recipient. Edited by CC Cunningham, CKF Program Manager. One spring day during my junior year of high school, the usual lunchtime banter was abruptly interrupted by one of my friends exclaiming, “Oh my god, Paulsen—your eyes are yellow!” This initial discovery led to months

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Running for a Cause: PSC & Liver Transplant Awareness

Jay Bernheisel is a liver transplant recipient and one of ten runners on the Chris Klug Foundation’s 2019 TCS New York City Marathon team. He will also be accompanying and speaking on behalf of CKF as they travel to Mount Sinai Hospital and the New Jersey Sharing Network headquarters during

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Time to Transplant: Bella’s PSC Story

Written by Tracy Pacini, Bella’s mother. Edited by CC Cunningham, CKF Program Coordinator. It all started when Bella Pacini was in first grade. She was diagnosed with Crohn’s disease, an inflammatory bowel disease in which the immune system attacks the gastrointestinal tract. At the time of diagnosis, Bella’s doctors noticed

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My Battle with Primary Sclerosing Cholangitis

It was October of 2008 when I got the call every man dreads. I had recently seen my family practitioner for a routine check-up. The call that followed was not the one expected, instead, the doctor indicated there were some numbers that did not look right and we needed to

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“Say Yes To Life” – A Rainbow of Hope

I gasp with excitement every time I see a rainbow. There is something so magical about unexpectedly spotting an arched array of colors in the sky. It feels as though I am receiving a gift from nature and I can’t help but feel hopeful, inspired and full of wonder. My

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