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Tagged as: Organ Donation Awareness

When you get to the top of the mountain, keep climbing.

There I was standing under the event banner at the base of Aspen Mountain, with my arms raised joyfully yelling, “Summit for Life!” My husband, Noah, on one side, Chris Klug on the other, alongside a group of extraordinary human beings touched by transplantation. It was the kick-off to one

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I have been given another chance!

CF (short for Cystic Fibrosis) has no cure yet, and so having crumby lung function and frequent infections leads to needing a double lung transplant. That is the stage that I’m at. I have now received my life-saving transplant at 27 years old. Thank you to my beautiful donor and

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A Day Of Impact and Inspiration at NYU Langone Medical Center

We went to NYU Langone Medical Center in NYC for a Patient Ambassador Visit with Chris Klug, Eric Barton and Lauren Shields to inspire patients pre and post-transplant. First, we met with patients who were coming back to the hospital for check-up’s post-transplant. We met with six patients and got to

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A Visit To Remember At Mount Sinai

We just returned from a Patient Ambassador visit to Mount Sinai in New York. We were able to meet with about 30 people who had either received a transplant, were waiting for a transplant or were friends/family of a loved one who received/is waiting for a transplant. Chris Klug and Eric

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CKF and Live On NY Meet

Today was a very special day.  We met with Live On NY the organ procurement organization of the Metropolitan area.  We were given a presentation on what they focus on and their efforts to help raise awareness about organ donation in the state of New York. They showed us some very eye-catching campaigns

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The gift their loved one bestowed upon me will not be wasted

I woke up with an extraordinary feeling I had not experienced in almost a decade. Not the grogginess and pain that I had experienced more times than I care to remember. No, this was the feeling of hope. The first words out of my mouth when I saw the nurse

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It’s good to be Harold

Someone had just given me a shot in the ass that was supposed to make me feel a little less anxious, maybe even a bit loopy. It was December of 2000 and after months of testing – both psychological and medical – a team of transplant surgeons was about to

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An Impact Beyond Words

We had the opportunity to visit and meet with the team of Life Sharing in San Diego, California. They are one of the four Organ Procurement Organizations (OPO) in California. They have an amazing passionate staff that works closely together to help educate people about organ donation. They also make sure the

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The Beginning of the Gift of Sight

We were fortunate enough to be invited to go behind the scenes into Sierra Donor Services in Sacramento, California as apart of our Patient Ambassador Program with Astellas. We were joined by our Patient Ambassador Valen who has received a kidney transplant 15 years ago and her mother who received

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#WillowStrong

Willow was your average 5-month-old, exploring the world around her, eating, napping and staring at her siblings make silly faces. Her dad was holding her while mom finished up dinner when dad asked her mom to look at Willow’s eyes. They looked a little yellow in the whites. Her parents

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