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Tagged as: liver transplant

Two Hospitals and a Marathon: Welcome to New York

All we can say is…WOW! What a fantastic weekend the Chris Klug Foundation just had in the Big Apple. Chris Klug and CKF Program Coordinator, CC Cunningham, headed to New York City for a whirlwind weekend that started on Friday with a visit to Mount Sinai Hospital as part of

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From MELD to Marathons

Maksim is one of nine individuals who will be running on the Chris Klug Foundation’s charity team in the 2018 TCS New York City Marathon on Sunday, November 4th. “They must have mixed up the lab results,” said Annabella, reading the letter that had just come in the mail. A

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Time to Transplant: Bella’s PSC Story

It all started when Bella Pacini was in first grade. She was diagnosed with Crohn’s disease, an inflammatory bowel disease in which the immune system attacks the gastrointestinal tract. At the time of diagnosis, Bella’s doctors noticed that her liver enzymes were elevated and she would have to undergo additional

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Ain’t No Party Like a West Coast Party…with CKF!

CC Cunningham is the Program Coordinator for the Chris Klug Foundation. …’cause a West Coast [CKF] party don’t stop! And what a party it was! On September 19th, as part of our Patient Ambassador Program, sponsored by Astellas, the Chris Klug Foundation traveled to sunny San Diego, California to visit

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No Greater Love

Brian Hinsley is one of CKF’s 2018 Bounce Back Award winners. Kim Hinsley is Brian’s wife and caretaker during his lifesaving liver transplant. I’m going to share Brian’s journey from my side, the caregiver’s side. Brian and I have been married for 22 years now. On our wedding day, we

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The Process

It takes patience, determination, organization and the will to survive to go through the process of getting on the liver transplant list and then waiting for a transplant. I’m in the trenches right now and telling myself that all of the work I’m putting into this will lead to healthier

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My Battle with Primary Sclerosing Cholangitis

It was October of 2008 when I got the call every man dreads. I had recently seen my family practitioner for a routine check-up. The call that followed was not the one expected, instead, the doctor indicated there were some numbers that did not look right and we needed to

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Their Son’s Liver Went To Me

When I was a college sophomore I was diagnosed with Wilson’s Disease, a hereditary illness that meant that my body did not metabolize copper. Instead, copper that I ingested in food and water would migrate to my liver or brain. It could be treated with drugs and diet. I seized

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This Is My Day To Give Back

Last week we went to the Denver Children’s Hospital with our Patient Ambassador Seth and his mother Tammy. Seth is 12 years old and has had three liver transplants. It was very special to get to spend some time with Seth and Tammy while we were helping to lift the

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