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Tagged as: liver transplant

“You Are Not Alone” – San Diego Patient Ambassador Visit

Valen Keefer is one of the Chris Klug Foundation’s (CKF) Patient Ambassadors and speaks on behalf of the foundation, polycystic kidney disease (PKD), and organ donation. Valen traveled to San Diego with CKF as part of the organization’s annual Patient Ambassador Tour, presented by Astellas Pharma, to speak with transplant

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Early Liver Transplant Recipient Shares His Story

In 1990, after living with cirrhosis for years, Charlie Scott was introduced to Dr. Thomas Starzl, the first person to perform liver transplantation in humans. When Dr. Starzl told him about this risky new procedure, Charlie figured he had nothing to lose. 29 years later, Charlie is still going strong

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35 Reasons: The Documentary – Part I

Phil Shin is a runner from South Pasadena, California. In 2018, just a few weeks after running his eighth Los Angeles Marathon, Phil was diagnosed with early-stage liver cancer. In order to remove the racquetball-sized tumor in his liver, he had to have a portion of his liver taken out.

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Kicking Off Our 2019 Patient Ambassador Tour!

2019 is well underway, which means another year of our nationwide Patient Ambassador Tour! Last Wednesday, we kicked off the 2019 Tour, presented by Astellas Pharma, right here in our home state of Colorado, where we visited two hospitals in the Denver area. To honor National Pediatric Transplant Week, our

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A Living Act of Kindness

Jordan is Hudson’s mother and organ donation advocate. My son, Hudson, was born on October 27th, 2016 with a condition called heterotaxy. At ten days old, he underwent surgery to prevent bowel mal-rotation and, while operating, an exploratory search revealed Hudson’s liver was shaped abnormally, had an unusual color, and

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It’s Not About the Cards You Are Dealt; It’s About How You Play Your Hand

Jacob Ragland is a liver transplant recipient and college student at the University of Tennessee. At my high school, every senior is required to recite a personal talk in front of the entire student body and staff. This task was in the back of my mind going into my senior

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Two Hospitals and a Marathon: Welcome to New York

All we can say is…WOW! What a fantastic weekend the Chris Klug Foundation just had in the Big Apple. Chris Klug and CKF Program Coordinator, CC Cunningham, headed to New York City for a whirlwind weekend that started on Friday with a visit to Mount Sinai Hospital as part of

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From MELD to Marathons

Maksim is one of nine individuals who will be running on the Chris Klug Foundation’s charity team in the 2018 TCS New York City Marathon on Sunday, November 4th. “They must have mixed up the lab results,” said Annabella, reading the letter that had just come in the mail. A

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Time to Transplant: Bella’s PSC Story

It all started when Bella Pacini was in first grade. She was diagnosed with Crohn’s disease, an inflammatory bowel disease in which the immune system attacks the gastrointestinal tract. At the time of diagnosis, Bella’s doctors noticed that her liver enzymes were elevated and she would have to undergo additional

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Ain’t No Party Like a West Coast Party…with CKF!

CC Cunningham is the Program Coordinator for the Chris Klug Foundation. …’cause a West Coast [CKF] party don’t stop! And what a party it was! On September 19th, as part of our Patient Ambassador Program, sponsored by Astellas, the Chris Klug Foundation traveled to sunny San Diego, California to visit

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