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Tagged as: liver

Running for a Cause: PSC & Liver Transplant Awareness

Jay Bernheisel is a liver transplant recipient and one of ten runners on the Chris Klug Foundation’s 2019 TCS New York City Marathon team. He will also be accompanying and speaking on behalf of CKF as they travel to Mount Sinai Hospital and the New Jersey Sharing Network headquarters during

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“You Are Not Alone” – San Diego Patient Ambassador Visit

Valen Keefer is one of the Chris Klug Foundation’s (CKF) Patient Ambassadors and speaks on behalf of the foundation, polycystic kidney disease (PKD), and organ donation. Valen traveled to San Diego with CKF as part of the organization’s annual Patient Ambassador Tour, presented by Astellas Pharma, to speak with transplant

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Early Liver Transplant Recipient Shares His Story

In 1990, after living with cirrhosis for years, Charlie Scott was introduced to Dr. Thomas Starzl, the first person to perform liver transplantation in humans. When Dr. Starzl told him about this risky new procedure, Charlie figured he had nothing to lose. 29 years later, Charlie is still going strong

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35 Reasons: The Documentary – Part II

Phil has collaborated with the Los Angeles Marathon and Conqur Endurance Group to create “35 Reasons,” a two-part documentary that tells his story and presents the concept of living organ donation to a wider audience. In July, we published Part I of Phil’s Donor Story along with the first part

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35 Reasons: The Documentary – Part I

Phil Shin is a runner from South Pasadena, California. In 2018, just a few weeks after running his eighth Los Angeles Marathon, Phil was diagnosed with early-stage liver cancer. In order to remove the racquetball-sized tumor in his liver, he had to have a portion of his liver taken out.

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The Most Important Lesson My Brother Taught Me…

Christy Setzke is a donor sister from Wisconsin. Her brother, Todd, was an organ donor after his passing. Christy now advocates on behalf of organ & tissue donation. Most recently, she hosted a Donor Dudes event at Ashland High School in which she spoke to 11th and 12th-grade Medical Science

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Kicking Off Our 2019 Patient Ambassador Tour!

2019 is well underway, which means another year of our nationwide Patient Ambassador Tour! Last Wednesday, we kicked off the 2019 Tour, presented by Astellas Pharma, right here in our home state of Colorado, where we visited two hospitals in the Denver area. To honor National Pediatric Transplant Week, our

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It’s Not About the Cards You Are Dealt; It’s About How You Play Your Hand

Jacob Ragland is a liver transplant recipient and college student at the University of Tennessee. At my high school, every senior is required to recite a personal talk in front of the entire student body and staff. This task was in the back of my mind going into my senior

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I’m Here Because Someone Chose to Save My Mom

I’m going to tell all about the story of my mom and how organ donation changed my life. My mom calls me her special miracle baby because in part I am here because a family chose to support organ donation and transplantation and donate their loved one’s liver to my

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