CF (short for Cystic Fibrosis) has no cure yet, and so having crumby lung function and frequent infections leads to needing a double lung transplant. That is the stage that I’m at. I have now received my life-saving transplant at 27 years old. Thank you to my beautiful donor and
Tagged as: Chris Klug Foundation
A Day Of Impact and Inspiration at NYU Langone Medical Center
We went to NYU Langone Medical Center in NYC for a Patient Ambassador Visit with Chris Klug, Eric Barton and Lauren Shields to inspire patients pre and post-transplant. First, we met with patients who were coming back to the hospital for check-up’s post-transplant. We met with six patients and got to
A Visit To Remember At Mount Sinai
We just returned from a Patient Ambassador visit to Mount Sinai in New York. We were able to meet with about 30 people who had either received a transplant, were waiting for a transplant or were friends/family of a loved one who received/is waiting for a transplant. Chris Klug and Eric
CKF and Live On NY Meet
Today was a very special day. We met with Live On NY the organ procurement organization of the Metropolitan area. We were given a presentation on what they focus on and their efforts to help raise awareness about organ donation in the state of New York. They showed us some very eye-catching campaigns
The gift their loved one bestowed upon me will not be wasted
I woke up with an extraordinary feeling I had not experienced in almost a decade. Not the grogginess and pain that I had experienced more times than I care to remember. No, this was the feeling of hope. The first words out of my mouth when I saw the nurse
It’s good to be Harold
Someone had just given me a shot in the ass that was supposed to make me feel a little less anxious, maybe even a bit loopy. It was December of 2000 and after months of testing – both psychological and medical – a team of transplant surgeons was about to
#WillowStrong
Willow was your average 5-month-old, exploring the world around her, eating, napping and staring at her siblings make silly faces. Her dad was holding her while mom finished up dinner when dad asked her mom to look at Willow’s eyes. They looked a little yellow in the whites. Her parents
Expecting Twins!
Mark is a law enforcement hero and now a proud recipient of twins, twin lungs that is… As I’m entering the 3rd trimester since my life saving bilateral lung transplant on New Years Day 2017, I try not to complain about the meds, the weakness, dramatic loss of muscle mass and
I Hope To Encourage The Latino And Black Communities To Become Organ Donors
My journey to my kidney transplant started at the age of 16. When I was diagnosed with Chronic Kidney Disease stage 3. Tried different treatments to slow down the damage. At 20, I was told I needed dialysis soon so I had my fistula placed in my left forearm. At
Brady and Belichick are NOT Organ Donors
While a freshman in high school I was diagnosed with Polycystic kidney Disease. By my early 30s each kidney had grown to the size of footballs creating a distended abdomen. With all my internal organs pushed and squeezed I began to get sicker feeling like morning sickness. I was vomiting